Assesment of quality of life in children with chronic kidney disease on dialysis and their mothers.

Ali, Ahlam Badawy; Hassan, Mostafa Abd Elazeem; Abdelhafez, Basma Mahmoud; Ismail, Ahmed Hagag

doi:10.21608/geget.2023.342864

Assesment of quality of life in children with chronic kidney disease on dialysis and their mothers.

Document Type : Original Article

Authors

¹ Department of Pediatrics, Faculty of Medicine. Assiut University, Assuit, Egypt.

² Department of Pediatrics, Faculty of Medicine AlAzhar University, Assuit, Egypt.

³ Mallawi Specialized Hospital. Ministry of Health, Menai, Egypt.

10.21608/geget.2023.342864

Abstract

Introduction: Chronic kidney disease in children (CKiD) represents a major global health issue that is becoming more and more common. It burdens the child and his family. Their quality of life (QoL) is impacted.
Aim of the study: to assess the quality of life (QOL) of children with end-stage renal disease (ESRD) and their mothers.
Methods: This study was carried out in Pediatric Nephrology Unit at Assuit university Hospital on 35 child with ESRD on regular hemodialysis and their mothers. Using WHOQOL-BREF, Peds QL-ESRD and Parental Stress Scale .in a period from May 2022 to May 2023.
Results: According to Peds QL-ESRD, there is low quality of life in all of its domains, with children ≥ 12 years have higher quality of life than younger children in the worry domain with significant p- value (=0.049). As regard duration of dialysis, children on dialysis more than one year had higher quality of life than those less than one year. Mothers of children with ESRD show low quality of life according to WHOQOL-BREF. There is a significant difference according to their age in the psychological domain (p value =0.049)and social domain (p- vale < 0.010). Parental Stress Scale shows elevated level of stress with significant p-value <0.001.
Conclusion: Quality of life of children on regular hemodialysis and their mothers is low in most aspects. Older children and older mothers had better quality of life than younger ones suggesting that older experienced mothers can cope better with their diseased children. Mothers of ESRD children have elevated level of stress in general but they are satisfied.

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